tag:blogger.com,1999:blog-5903256389739635267.post4602186389447843384..comments2016-12-19T12:30:38.506-08:00Comments on In memory of our precious baby, Remington "Remi" Lyn Remer: July 24, 2016Ben and Amyhttp://www.blogger.com/profile/12791932470010921559noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5903256389739635267.post-9298446591377249762016-12-19T12:30:38.506-08:002016-12-19T12:30:38.506-08:00We are truly humbled by your generosity. Thank you...We are truly humbled by your generosity. Thank you!! What an amazing group you have. Sadly I am just getting around to officially thanking you for the gift card. My son, Simon, is now 7 months old and doing well. It was a foggy 6 months but the fog is lifting. Simon was in and out of the hospital his first 6 weeks of life with no diagnosis. At 6 weeks he was admitted to the PICU for seizures and respiratory failure. He spent 7 days on life support then another 8 in the PICU. It was a very scary time. During our stay he was diagnosed with 22q11 deletion syndrome. Basically he is missing parts of his 22nd chromosome. This syndrome has the potential to affect every part of his body, including his precious little mind. It's a wait and see syndrome...for the rest of his life. In October he had heart surgery to repair the heart defect that is typical with this syndrome. It went beautifully! I am now living in a world I never thought I would, I am now a medical mama. It’s overwhelming and people tell me I’m strong, but anyone in my shoes would be just as strong. When you’re a parent you just “do”. We've had a lot of love, support and prayers for little Simon and we couldn’t be more grateful. We take it day-by-day and celebrate every milestone. Thank you for your love, support, and prayers. xoamanda irwinhttps://www.blogger.com/profile/03377579755252814289noreply@blogger.comtag:blogger.com,1999:blog-5903256389739635267.post-69722144591818402632016-07-27T14:46:11.535-07:002016-07-27T14:46:11.535-07:00Oh my goodness! How blessed we feel to sneak home...Oh my goodness! How blessed we feel to sneak home to get clean clothes and find a card and two Visa cards in our mail. Thank you for sharing your story. Thank you for supporting us! Thank you for praying for us! Thank you for taking care of others, as Jesus did (Love God, Love others). We are just blown away by your kindness! We will be paying it forward when we are able. Thank you from the bottom of our hearts!!!!Anonymoushttps://www.blogger.com/profile/02901093106719771317noreply@blogger.comtag:blogger.com,1999:blog-5903256389739635267.post-12593491499048272052016-07-27T14:46:01.565-07:002016-07-27T14:46:01.565-07:00Please feel free to follow our journey:
Www.baby...Please feel free to follow our journey: <br /><br />Www.babyhjourney.weebly.com<br /><br />Updates are in the "about" tab.Anonymoushttps://www.blogger.com/profile/02901093106719771317noreply@blogger.comtag:blogger.com,1999:blog-5903256389739635267.post-76545569391118063722016-07-27T14:44:44.231-07:002016-07-27T14:44:44.231-07:00Oh my goodness! How blessed we feel to sneak home...Oh my goodness! How blessed we feel to sneak home to get clean clothes and find a card and two Visa cards in our mail. Thank you for sharing your story. Thank you for supporting us! Thank you for praying for us! Thank you for taking care of others, as Jesus did (Love God, Love others). We are just blown away by your kindness! We will be paying it forward when we are able. Thank you from the bottom of our hearts!!!!Anonymoushttps://www.blogger.com/profile/02901093106719771317noreply@blogger.com